Well its been a few days since I have posted, we have been settling back into our lives here at home, and are struggling a little with keeping up the feeding schedule with Caitlin. I find that I am constantly worried about if she ate as much as she did in the hospital or if shes eating the right things, and wanting to count calories. But I know that I just need to let it flow and she will eat at the times we specify.
I thought this was going to be a little easier to settle into, but in the hospital I guess there was no real distractions, no cooking, cleaning, going to the store, soccer games, karate or school. Now I have to figure out how to balance everything that I do with everything that she does, as well as continually watch her because she wants to sneak food. Her eating times are 8am, 10am, 12pm, 3pm and 6pm, and a bedtime snack if she asks, and I still manage to miss those times sometimes and then have to adjust her eating schedule.
Shes holding steady at 39.6lbs only 4 oz less than the hospital, so I'm hoping I am doing a good enough job of helping her succeed in her eating. I am a little discouraged though, because my support from the hospital is gone and I guess I felt "safe" having them there with us during the meals, and now I feel a little overwhelmed with this responsibility. Its hard for me to admit that, but its getting frustrating for me. I have all the tools, and I try to use them as much as I can, but its so much different at home with the hustle and bustle of the home life.
At school today she told me she "lost" her bag of snacks for snack time, and that means she lost about 200 calories out of the day. She ate pretty well for lunch having a pb&j, danimals yogurt, jello snack pack, banana and a juice box. Tonight she ate pork chops, mac "n" cheese, and some sour dough bread with butter, and a side of lemonade. Of course she had ice cream for dessert.
We see the feeding therapist on wednesday so hopefully I can gain some insight into the issues that I am facing. Maybe I am just freaking out over nothing, maybe I'm not, but I think I need them to give me some peace of mind.
I think you are doing GREAT! Don't be so hard on yourself. :)
ReplyDeleteYou are awesome!! I agree with Sarah. Don't be so hard on yourself. Caitlin has an amazing support team at home with you and Stephen!! :)
ReplyDeleteI agree don't be so hard on yourself. They people at CHOC are trained to do this and you are learning with Cailin. You are her biggest advocate and supporter and would never do her wrong. Time to pat yourself on the back and be proud for all you have done and helped Caitlin to accomplish.
ReplyDelete